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[personal profile] badgerbag
Today I weighed up what I had to do and considered: no kids to care/shop/cook etc. for till the weekend, no meetings past 10am, work stress pretty low right now. It was sunny even in the early morning. This is what I have been waiting for all summer to go to the beach or basically, anywhere at all that isn't my usual haunts. I would like to use my bit of extra energy not to clean the house, do laundry, or shop or even go do physical therapy or go to the pain clinic. It is time for a Very Mild Adventure!

I plotted a little and then took the J and N to the beach, worked and had lunch from a cafe. The train wasn't too bad, though it took an hour. Lunch at Beachside (food not as nice as it looked, no wireless, but outside tables) Then worked from the Java hut or whatever it is, and then once it got really sunny scooted across the Great Highway and went up to where there is a sidewalk (opposite the windmill at the corner of Golden Gate Park).

I walked a little way into the sand next to some sand dunes thinking maybe i could establish myself in some way looking at the ocean.

Sand is good for challenging all your small different muscles in your ankles and knees. Like with the whale watching, I could feel things happening in my ankles that were exciting but scary. Either I'm re-damaging them in horrible ways, or I'm breaking adhesions or scar tissue in there deep down. I can move my ankles better in the last couple of weeks, bending them further up. and have been icing them at least twice a day (often all night)

I could not get very far into the sand and the beach is very huge. I thought how I am lucky to get to do this and felt congratulatory for at least getting to the beach twice this summer at all (once with the kids to Aquatic Park which is super easy access and narrow) and glad that I picked a good day that was sunny and warm. Then suddenly felt sad like I could not bear the pollyannaish being glad thing. It is true I am lucky and can feel appreciative and yet I also have the horrible thought every time I do something that maybe this is the best it gets and I will never get any further onto a beach, or with walking, or whatever, and everything will get more difficult. Still, whatever, right, because I am also lucky enough to cope well with it and have a ton of support, skills, privilege, job, etc. to make things extremely pleasant and easy. And, a month ago I could not have done this as I was still too exhausted and weak from not being able to eat/gastritis/esophagus or whatever it is. Fuck, 2 weeks ago I was also getting over a cold and was hapy just to be carted along on yatima's errand. (which was great... and took us to the presidio and beach side both... but i was decrepit.) So obviously I felt happy to be able to have an independent outing and my usual pride in being bad ass enough to go across town in my tiny scooter. Take that, FEAR. I felt in planning it that I was brave enough to do it because the scooter will fit into a car and I could call a taxi which woudl actually come get me, if I got so tired that taking two trains back was daunting or if I hurt myself by accident.

BUT I thought, well here I am alone at the beach in a desolate spot. No one is looking. Perhaps I could just have a brief cry about it all. I felt some grief and loss. I wished i could have been at the beach on the east coast where my family was a few weeks ago, and there would be beach roses instead of eternal west coast ice plant/sea fig. Everything would smell "right" and would be lovely though sad in other ways. Mostly I just wished I could climb around and run around in the sand and go down to the water and feel more free to explore as I very much like to do. I cried a bit for when we were at bean hollow last week with my dad and I couldn't go look at the tide pools with moomin though I really wanted to. At least he did what i told him and went without me and had a good long look at them on his own. OK. So I cried on the beach for 10 minutes and felt very self indulgent. I wished I could just be in a sad mood for the rest of the day. I thought how nice it would be to have a strong drink or be on the super duper drugs they shoot into my veins when I get my back injections. (I think some combo of valium and other things) Then I felt better and went back to the cafe and worked some more and got a VERY crowded train home.

I am still kind of weepy to be honest.

I plotted future trips and thought it would be nice to go out again but allow much more time, and go all the way up to cliff house and the nature center/overlook/gift shop/coffee bar just above Sutro baths. Or even further and scooter all along the walkways around the point whatever that is called which I haven't been on for years.

It was a tantalizing but not really satisfying beach trip.

I'd like to go to Moss Landing but have a magic dune buggy to go out along the beach and also be able to kayak through the slough there without hurting the hell out of my hands. Not sure if I could really do it anymore. Maybe in a tandem kayak. An could it be an invisible dune buggy so I could chill the fuck out and get in and out of my wheelchair without 800 people staring at me and stuff.

I talked a good long while with a guy whose mom had a stroke and has a jazzy, at the train platform behind the safeway. he was very nice and we discussed the intricacies of scootering. She needs a joystick controller really and more stabilty than a travelscoot but there could still be smaller powerchairs (she is small) that fold up. Also, an off duty muni driver at the java hut talked with me a while about his wife who has MS and another kind of large scooter that she has trouble fitting anywhere. She would like something more portable but insurance will not pay. She could handle or nearly handle something like my scooter. I got him to drive it around a little bit to try it out. Also, I talked with many, many other people from kids to surfers to random slightly limping older ladies who all liked the scooter and thought it looked cool and wished they had one to play with or get around better on. I should keep count. I always have slightly ambiguous grumpy feelings about the people who seem to approve of me extra because I take up less space and "look cool". Thanks but how about if I didn't, would you just hate on me or what. I try to take it as best as possible and I also utterly don't mind children who are like HOLY SHIT I MUST DRIVE THIS FUN TINY MOTOR TRICYCLE THING while their parents are scared I will be angry. Hahahhaa.

Day of Feelings!

Date: 2014-08-22 03:55 am (UTC)
jesse_the_k: Well nourished white woman riding black Quantum 4400 powerchair off the right edge, chased by the word "powertool" (JK powertool)
From: [personal profile] jesse_the_k
I know the sorrow of "I wish I could go further" but I also know the joy of "I enjoyed this day as it came." Sounds like a very full day indeed.

I can't tell you how many times a day I suppress the urge to offer unsolicited advice to strangers on better possible mobility aids.

The Frontier V6 All-Terrain is huge but it confidently travels over sand dunes, snow, gravel as well as SF curb ramps. That chair also comes in a compact model that's aimed at kids but would probably work for you as well. The USAtechguide rounds up a bunch of add-on systems for manual chairs to either motorize them or improve on the power throughput of your shoulders. Those last -- the Widjit in particular -- provide all the advantages of a manual in its folding wonder, plus speed and power from dramatically improving the geometry of pushing a wheel.

Sure hope those teeny batteries like your fabulous tricycle thing will become the standard, and then who knows!

Date: 2014-08-22 05:47 am (UTC)
jesse_the_k: Rubik's Cube puzzle with all-white faces labelled in braille (Braille Rubik's Cube)
From: [personal profile] jesse_the_k
That's lovely, although it also seems like it would be very top-heavy therefore risky on curves.

The carry-on form factor is brilliant. The product mission statement is all about managing disablist crap from non-disabled people, but such is life.

What worries me more is no price tag and the prominence of the "invest in us now!" choice on the menu. So much vaporware in this industry.

Date: 2014-08-22 04:50 pm (UTC)
synecdochic: torso of a man wearing jeans, hands bound with belt (Default)
From: [personal profile] synecdochic
♥ I know these feels very well!

Date: 2014-08-23 04:11 pm (UTC)
sara: S (Default)
From: [personal profile] sara
Heh, I wasn't scared you'd be angry -- I am quite sure you can school a small child if you want to -- it was more a concern that Herself would back the scooter off the curb and wreck it!

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